Ding Ding! Rouuunnnnd Twwwoooo!
I am back in heart failure.
I received the call today. The reason it took so long is because there is subjectivity in reading Echo results. My Nurse Practitioner had three specialists review my echo at different times only knowing my history and current symptoms. All agreed unanimously that my new EF is closer to 40%, a definite decline. Tariq explained what's going on to me in layman's terms (even us nurses need that sometimes:). My heart is not pumping efficiently from the bottom and it's placing increase demand on my septum (wall that separates the ventricles of the heart) causing stress on my valves therefore causing regurgitation of the mitral and pulmonic valves.
I was asked to come in today to have a "King of Hearts" placed on my chest, a monitor for one month. I think that name is cute! They drew a slug of labs to try and figure out the why behind all of this and gave me scripts for the heart medications.
So how am I doing? Well I haven't had time to think of that really. Jalyn has been with me and I'm trying (and doing a rather good job if I don't say so myself!) to stay positive and not cry in front of him. I limited my phone conversations to my hubby and nanny to coordinate care for Leila so that Jalyn wouldn't have to hear this over and over and realize something is very wrong here. He knows that mommy's heart is sick again, and it will get better again. That's all his little heart needs to know.
A repeat echo in 3 months so see if medications improved heart function. If not, well let's just say we'll cross that bridge if it comes shall we? The first gal to decline after successful recovery did so after six months of obtaining a normal EF. She then went on to receive a heart transplant and is doing well. If you get on-line and read (I don't advise this, but need to take my own advice) you will find a rather grim outcome predicted. HOWEVER, much of the research is talking about women who had subsequent babies not about women like me. I refuse to think this way. I have total faith that with proper medications my heart will once again recover.
The team that helped me through once is there and ready again. None of us thought we would ever deal with this again so it's definitely a surprise, but were all in for another fight. There is not one person that surrounds me that this doesn't effect in one way or another. Everyone is being so strong, not breaking down or freaking out (at least in front of me) and I thank you so much for that. I need your strength (I pull from it), I need your battle gear on and I need your love more than anything. I feel lifted up in the Lord's hands and I KNOW He will pull me through. There was a reason the first time and I trust there is a reason now.